One doctor to told me just to control it and train as I like but the other one said that with those hearts parameters I will have only 1-2% to have operation in the future but if I will continue to do triathlon for sure I will have to have one. Anyway, his aorta was growing at a rate of 2 mm per year (he was growing faster:).and they put him on 100 mg Losartan. Benefits: long-term durability. I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. I have been advised not to run any more marathons or half-marathons, but that I can still compete at up to 10km races. My son is a very active and healthy 14 year old. Sometimes my cardiologist says there is minimal change and he thinks my aorta had slightly enlarged by 1-2mm. Activities are not usually restricted for athlete patients with mild aortic stenosis. So you know, this is not uncommon for heart valve surgery patients. But if you have a bicuspid aortic valve, you only have two cusps. In general, the larger (in diameter) the substitute valve is, the less aortic stenosis it will produce. I love running. Bicuspid aortic valve is the most common congenital cardiovascular anomaly, occurring in 1-2% of the population. Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. with an efficiency of 69%, I have an appointment with a specilaist next week and am just wanting some, even if vague, answers. Rest pulse (70 bpm|50 bpm) Because it was just a cardiologist, not a sports cardiologist or physiotherapist. After a 6 month ramp up, will the Porcene valve take the stress of the 5 rep sets? Next year I would like to finish my first marathon but now I dont know whether I should keep running. enlarged LV = 350ml I would like to thank you very much for providing me with your thoughts. Maybe thats not surprising, given that Im a heart surgeon and that many individuals with BAV need operation at some point. Yes, there are many athlete patients whove had operation for BAV/aortic replacement and returned to a variety of sports. I knew none of this until a year ago. Probably wise to follow the advice of your doctors who know the details of your situation. In fact, one young man died 5 years after operation (from other non related causes) and the study on his aorta tissue revealed that the device helped it to heal, presenting a healthy histology. Athletes with BAV who have no stenosis or regurgitation of the aortic valve AND have no enlargement of the nearby aorta may participate fully in their sports. And any valve substitute (with valve replacement) is clearly not as efficienteven if the substitute is better than a diseased valve. Is strength training that involves only using ones own body weight ok with mild BAV issues, or is all strength training out? His whirlwind romance with Katherine Schwarzenegger has resulted in a rather large ring on her finger. I am considered elite in my age division. Its probably not possible to have too much information as you think about your situation. "I had been doing some work around the house working with a heavy ladder, he told PEOPLE of his activity in the days leading up to his heart attack. If echo shows a normal size, thats probably okay. When I had my valve replaced I was told that it would have a 20 year ish life but I think it should exceed that. Substitute valves. We also sign a school waiver every year. I had to take time off gym, when I returned I only did light weights and only walking on the 4x a wk and the same issues where still there. For many patients, I recommend no heavy lifting (>10 pounds) for the first month after conventional heart surgery. I am 38 and very active (running, cycling, strength training etc). I hadnt heard about the technique previously. Max Page - Child Actor (Darth Vader in VW Superbowl ad) - Tetralogy of Fallot. The plasma volume and the heart rate increase, while the systemic vascular resistance decreases throughout the first trimester and plateau about halfway through pregnancy [10]. mod-severe regurgitation Thats probably what the doctors are watching for. Is the biggest risk (from numbness) a over-calcified valve which would cause lack of blood flow? Or is the real risk related to further deterioration of the heart in the longer term that would be picked up by 6 monthly monitoring, which may indicate the need for surgery but not an immediate risk of dying suddenly? But Ill check it as soon as possible. Hes a 30-year-old 8th grade science teacher, a cyclist and outdoorsman, who is chronicling his story with BAVfrom diagnosis, to evaluation, to preparations for upcoming valve replacement surgery. With so many similar stories, do you know why there is not more statistical data or studies done with regards to sports and BAV and changes in aortic diameter? Is it right to declared someone having BAV unfit for the post of a chemist? Athletes with mechanical or bioprosthetic heart valves may participate in low and moderate intensity sports, Athletes who are taking blood-thinning medications should avoid sports where bodily injury, with potentially life-threatening bleeding, might occur. Its now 8 months after surgery and Im pretty much back in my every day life, was even granted to attend my pilot medical tests which are due in 2 weeks. As of Monday, my BP at the echo appointment read 115/66. At approximately three months I became very ill and was diagnosed with prosthetic valve endocarditis. It usually consists of three flaps of tissue what are called valve cusps. Others won't have symptoms until adulthood, if ever. Only restrictions are no weights greater than 100 pounds or heavy contact sports. Probably a bicuspid aortic valve but there are many other possibilities Reply Now I take brisk walks and run on the treadmill only occasionally. The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. The problem is I have developed an aneurysm on my ascending aorta of 44mm. Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Dr. Larry Creswell on athletes and heart health. But neither of these procedures are durable for the long-term. More difficult questions relate to what are acceptable sports/exercise if operation is not (yet) needed. No enlargement of aorta or any other problems. Are there any things I can do now to help minimize my risk? I do not feel any of the effect of my condition when I run or workout. OPTIMUM HEALTH, INC This also assumes that there are no other cardiac issues or medical problems to consider. Hector V. Ive never heard about a mechanical aortic valve becoming loose because of high HR. Interesting situation Sean Miller. Also is it possible to never need surgery to replace the valve and that the AR stays stable, or even goes away ? Anyway, talk to a surgeon who understands quality of life means. These differences of opinion may be legitimate. I appreciate your input. He told me to carry on as normal and to take 300mg Irbesartan per day. These techniques are most applicable to situations in which there is regurgitation, rather than stenosis, of the valve and when there is also enlargement of the aorta. Ive thought that the next visit to the pediatrician would be a good opportunity to discuss the issue. My heart seems to heal, so that speaks well for my future.. However, his ascending aorta has been enlarging: 11/27/13 31 mm (echo), 6/10/15 39 mm (echo), 7/8/16 41 mm MRI). After the scans, ultrasounds, stress tests and TOE, I was diagnosed with BAV with no Stenosis, no Aortopathy and no evidence of Coarct and normal LV size and function. We generally limit weight-lifting (or other sports/exercise that have a high static component) for athlete patients with BAV and mild enlargement of the aorta. When Ive had patients in your situation, Ive usually recommended getting the screening when its CONVENIENT. First, Id encourage you to follow your doctors advice. Even if its one person I help. 24 HOUR GYM Something they suspect is also from birth but never previously picked up. And my doctor do not give me responsive and exact answer to my questions regarding sports. Down side: durabilitythe borrowed valve doesnt last forever; it will deteriorate and need re-replacement at some point. Barbara Walters - Aortic Valve Replacement. There are four valves of the heart, which are divided into two categories: Atrioventricular valves: The tricuspid valve and mitral (bicuspid) valve. Thank you for taking the time to respond to everyones concern. I would not want yo distinguish between the various forms of static exercise that you mention. In the simplest terms, a bicuspid aortic valve can be a serious heart valve disorder in which the valve only has two leaflets, or flaps, that control blood flow through the heart. About a year ago a pulmonologist discovered a grade 2/6 heart murmur during a workup for a sleep study. Thanks for the very insightful post, and for taking the time to reply to everyone here. Thank you for best websit. Thanking you in advance, Thats the main reason for choosing a tissue valve in my case. Ive a BAV with the fusion being between my right coronary and non-coronary leaflets. My question here is what is the damage I can cause to my heart, mechanical valve, if I keep my heart rate at hi intensity levels? Your surgeon will be in a good position to understand the exact details of operation that might be relevant when deciding whats safe.. The readers here would love to hear back from you as you work through this. Just double checking. Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. Great article! The tragic event's silver lining was that it caused Latifah, 46, and her mother, 67, to bond. Also suggested taking low dose of beta-blockers although I have been told the effectiveness has not been proven. Etc? My cardiologist is not concerned. Palace Insiders Say Prince William Is Already Furious About Prince Harrys Memoir Leaks, Prince Harry alleges Prince William attacked him over Meghan Markle in a new excerpt from, Scene Stealer: The True Lies of Elisabeth Finch, Part 1, Rupert Murdoch Knees Trump in the Balls While Hes Doubled Over Coughing Up Blood, By BG017/Bauer-Griffin/GC Images/Getty Images. In the 2.5 years from surgery, I returned back to riding within the first 3 months and later back to longer, decent training pace rides and racing but feel like I have lost my top end mojo. Have completed an excercise stress test and signed off as ok on reaching level 13. I found myself in emergency surgery 12 months ago with 50% leakage, an enlarged heart and an ejection fraction of 30. Does the (unreplaced) aorta enlarge over time? Finding this site is such a relief / source of hope for me thanks so much Dr. Larry!. At the USC Cardiovascular Thoracic Institute, we are dedicated to improving the statistics concerning cardiovascular and thoracic disease such as those once faced by the governor, said Starnes, who also serves as executive director of the Institute. Most children with BAV will remain without symptoms until adulthood. Ive not found any programs for evaluating repaired athletes unless something exist with a physiologist research lab. Is that far fetched? Im 52 years old and had surgery 2.5 years ago to repair an ascending aortic aneurysm (5.8 cm) and aortic tissue valve replacement. However, many people will develop complications from their BAV and may need surgery in their lifetimeeither to repair or replace the aortic valve, the thoracic aorta or both. In January 2021, she underwent open heart surgery to install an aortic valve. "I had to make lifestyle and diet changes, she said. I was running 9 to 10 minute miles. Many people in your situation will eventually need operation for replacement of the valve or the aorta, but wed need a crystal ball to know about the future. He is very athletic. Regards They are also predisposed to enlargement of the ascending aorta, the large blood vessel that carries blood flow away from the heart. In 1997, Schwarzenegger underwent heart valve surgery to correct his heart defect. Good to hear that youre making a good recovery from your second operation. Replacement of the aortic valve with either a cryopreserved human homograft (the aortic valve from a human cadaver) or with the patients own pulmonary valve results in the least obstruction to blood flow. I understand that we are only beginning to learn about the use of ARBs in patients who DO NOT have connective tissue disorders like Marfans syndrome. And, of course, aortic stenosis can affect ones native aortic valve or a prosthetic valve substitute. The issues of when, how, what sports are safe, etc. To much info to much detail so much information and advice. This content can also be viewed on the site it originates from. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Jones' goal with the AHA is to help women "actively put themselves on the track to heart health." Is a CT or MRI absolutely necessary for measuring the aortic diameter? Sadly, no crystal ball is available. Hi all, If I ever need surgery to replace my root , I understand that there is an element of complexity for such surgery, but after surgery, is life expectancy for individuals assumed to be shortened at all ? I have been checked by echo/CT every year for the last 7 years to monitor the progress of my valve regergitation and aortic aneurism. Down side: must take blood thinners to prevent blood clots from forming on mechanical valve. Hi, Further to this most recent discussion point I was advised that isometric exercises, such as planks and other pilates type activities, as I understand them, are perfectly safe with BAV. Thank you sincerely for your time and information. We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. At 4.0 cm, its important to be thoughtful about activities. Thanks for sharing your experience, Randy. In fact, in some people they can go undiagnosed for years. My Echo Stress Test is normal but when I finish obviously the pressure is higher (190-80 at the end) . . lessons) Really helpful. In addition, the Left ventrical has slowly increased over this same time period from 5.87 to 6.6 cm. Thats important to keep in mind. My Dr is almost certain that these symptoms are caused by issues that are not cardiac related, and that with at the stage my BAVD is at, it would not produce symptoms. In addition to this public search, we scanned our proprietary research database of over 1 million sources and were unable to find any specific research reports that address your goals. Your advice is always invaluable and most appreciated. Onside rations would be needed for hose with Marfans syndrome or other diseases of the aorta. My son is 12 years old. Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. Obviously, I underwent emergency surgery to replace the aortic valve (Medtronic open pivot mechanical valve) and have the aneurysm repaired with a dacron graft. The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. The CVTI is waging war against the leading cause of death among American men and women - heart disease. Medical therapy may be useful to slow or halt the progression of aortic valve disease and aortic enlargement by reducing the blood pressure and the blood pressure across the aortic valve. Save yourself.. I would really like for people to not have to experience what I had to experience, she continued. It makes the heart work harder than it should. Most people require treatment once symptoms develop. Our only tool to keep track of aortic enlargement is repeated measurements with CT or echo. Ive done so much research and there are lots of young people who have went on to play sports and lead normal lifes. Hi. Tachcardaia beetwen echo due that doctor couldent see clearly. Women are 50 percent more likely to be given a wrong diagnosis after a heart attack and are at a greater risk of dying within a year of a heart attack than men. Here are some celebrities that experienced severe heart valve defects and had to have either heart valve replacement and heart valve repair surgery. After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. However, my most recent scan in October revealed all Stenosis and LV thickening had gone completely (Doctor said this was a very positive result perhaps due to excercise and medication). I was physically examined by a medical board at new Delhi for the post of a chemist in geological servey of India but they declared me unfit as I have BAV . I get sporatic tingling in my left hand and footand every so often in my left cheek bone. The Best Amazon Presidents' Day Deals of 2023. What should I do ? Any person in my family there was no problem with the heart. Push for earlier date? I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. While I no longer due very strenuous activities, I still play softball, golf, kayak, ski, and do play hockey every now and again. I have recently had CT scan and MRI scan, following some chest pain experienced on track while doing marathon training. They wont repair my aneurysm unless it was 55mm during surgery or 60mm before surgery. Contact Editor. No aneurysm. I have found your article(s) very useful amongst what I see as so much mis-information out there. I didnt get it.". I believe that many Cardiologist are not as experienced regarding how to advise high-performing athletes (even older ones like us). Use of this site constitutes acceptance of our User Agreement and Privacy Policy and Cookie Statement and Your California Privacy Rights. I inderstand that my resistance training will likely be severely curtailed from this point forward, but severe restrictions on my endurance training will be a very difficult pill to swallow. If untreated, it can lead to blocked blood flow. Open heart surgery is sometimes the best option, but it is not always the only option. Diagnosed at 5 with BAV, checked yearly, and okayed to play soccer. For example, his spurt in enlargement happens to coincide with his spurt in growth. Bicuspid aortic valve: A bicuspid aortic valve only has two leaflets, increasing the risk of circulatory problems and heart conditions. We have got two completely different opinions from our cardiologists: I did run 1-2 times/week for a 1.5 months now, the situation is getting a little better but still I feel like a 80 years old. Up until this time shes played volleyball, basketball and has even run track in elementary. The only question I have is in regards to having my children screened. I will update you all after his Friday appointment. While she ended up being okay, she advised other women to be more cautious. Hi dr. Regarding the PEARS, the main concern is about the possibility that the aorta dissects even in a controlled measure (lets say 4.5cm). Hello dear doctor. I am 46 years old today, 22x marathoner, 4x Ultra (50 miles) and 5x natural fitness competitor. Its always good that investigators are looking for new solutions to old problems. Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. View HelpingHeartsCharitys profile on Facebook, View @HelpingHeartsMDs profile on Twitter, View HelpingHeartsCharityMDs profile on Instagram. We have made the decision to stop playing high school soccer and will reevaluate in 6 months to determine about Spring team soccer (less intense). In March 2018 he underwent emergency surgery to have this replacement valve replaced. If I had to choose a valve for AVR, Id choose a tissue valve. The surgery was a full success, and the valve is closing really well now. When there is narrowing (stenosis) or leakage (regurgitation) of the aortic valve, the heart must do extra work. Im 33 from UK and have known about my BAV since I was around 18. Thank you for your expert opinion. Thank you for your time. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. Kinda like a marathon but it will take me at least 9 hours. I suspect (and hope) you will say that the latest recommendations say no restrictions for someone like me but I havent seen yoga specifically mentioned. This is ridiculous. Thank you for the follow-up! Okay, thats greatbut I left feeling uncomfortable with the diagnosis. These operations can sometimes enjoy the benefits of each of the operations you mentioned.and avoid done of the down sides. A week after he made the varsity team as a freshman he was told by the doctor he couldnt play. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. I am now in no mans land of not needing immediate surgery (per the pressure number in left ventricle) and not being able to run more than 30 min. The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. My son is 16 years old and his story is very similar to many I read on your blog. Please help me . Since Im very active in sports, Id like to have your opinion on it. The increased stroke volume and cardiac output may cause . Last week, the CBS This Morning anchor announced via his co-anchors Gayle King and Norah ODonnell that he would be taking a break from the show to undergo heart surgery. Key points about bicuspid aortic valve. I am 51 and leaning towards a tissue valve because of my activities and that I am a firefighter. I dont think theres a way to predict the future in this circumstance. Ad Choices, Blood molecules as they exit the left ventricle: I'll be back., The 42 Best Romantic Comedies of All Time, The 25 Best Shows on Netflix to Watch Right Now. http://www.24hourgym.us. There has been a slight increase in the measurements over the last several years, but I am still below the threshold which would require surgical intervention. She is afraid, I can understand that. However, my surgeon told me that he could fit a tissue valve and so would not need to be on warfarin. The CVTI was created under the leadership of Dr. Vaughn Starnes, chair of the Department of Cardiothoracic Surgery and surgeon-in-chief at the Keck Medicine of USC. My problem is with cardiologists stating do not lift anything over 50lbs. Contemporary reports suggest that life expectancy with BAV is no different from the general population. I am also in grey zone waiting for surgery. In the blog post, I talked about the circumstances when operation is needed.as well as when sports are generally safe. The idea of somehow restricting the HR may be attractive as a means of curtailing strenuous activity. I would just like to share my experience of having a Aortic Valve replacement. Very often, follow-up CT scans and echocardiograms are needed every 6-12 months to keep track. Several contemporary elite triathletes have BAV and Ive written about their stories in: Examples from other sports would include Arnold Schwarzenegger, among others. (bicuspid aortic valve), singer Bret Michaels (atrial septal defect), and even 'Survivor' contestant Whitney Duncan (ASD). celebrities including musicians, actors, TV personalities, politicians, entertainers, and sports figures, etc. There was only a 0.2 cm increase in the previous 7 years (so from age 21 to 28). Aorta diameter (34 mm|34 mm); My son is 15 years old, he was born with BAV /aortic stenosis. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise.
I Used Boric Acid Suppositories While Pregnant, Do I Use Texturizing Spray Before Or After Curling, Australian Hi Vis Workwear, Wenatchee Gorge Shuttle, Articles C